About US

About WAS Community

A Single Source for WAS

The WAS Community has been developed to give you – families, patients, and doctors – a single source for learning, connecting, and staying informed.


This site is comprehensive. Peruse the site and you will find over 90 pages of background, guidance, studies and resources – and we’re adding to it every day.  If you find any errors or broken links, please send a note with broken link to info@wiskott.org.


You’re not alone. One of the main purposes of this site is to connect you with others. Share your story. Ask your questions in the discussion forum, or provide answers and guidance for others. The more you participate, the more our community grows – and the more valuable this resource becomes. Let’s create momentum together.

Stay Informed

Let us help take the stress out of staying informed. Join our community and we’ll alert you whenever a new resource or critical research is added to the website.

Two Passionate Organizations Collaborate

The Wiskott-Aldrich Foundation was created with the mission to provide information, enable research, and provide support for WAS families worldwide.  The foundation has been serving families with WAS since 2003 as the For Pete’s Sake Foundation, which was the first organized charitable support for families with WAS.  Its information and resource website, created in collaboration with physicians, researchers and patients, has served as the primary source of information and online support for WAS families. The Wiskott-Aldrich Foundation provides a means of linking patients with physicians, clinical trials, and with each other.  The Wiskott-Aldrich Foundation funds innovative scientific projects to study WAS and find improved cures to further its mission of improving quality of life for WAS patients.

The Wiskott-Aldrich Syndrome Foundation had a vision of a single easy-to-use portal that provided in-depth technical information on Wiskott-Aldrich Syndrome combined with integrated community features – all in a scalable and engaging design allowing for global recognition, participation and growth. The design of the WAS Community website look and feel was funded by a generous grant from the Wiskott-Aldrich Syndrome Foundation.

When the two organizations found each other, the WAS Community was born.

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