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The mission of the Wiskott-Aldrich Foundation (WAF) is to improve the quality of life for patients of Wiskott-Aldrich Syndrome and their families by supporting treatment, care, and research.
The Wiskott-Aldrich Foundation provides support to help families who are facing the uncertain recovery of their children with the disease. For those families where the disease causes "need" (as defined below), supplemental financial support will be made available (see eligibility requirements below). The Foundation will allot a portion of its funds to assist researchers in improving diagnosis, care and treatment methods and finding a potential long-term cure for the disease. Financial support is secured from individuals, businesses, and other private and public foundations in the form of both monetary and in-kind support.
Eligibility Requirements: Grants to qualified recipients will be made explicitly for the charitable purpose of the Foundation as outlined above. Grants to disqualified persons or organizations are prohibited. (Please see "Definition of Disqualification" below.) Grants will be made in an objective and nondiscriminatory manner. Persons who are suffering from rare diseases and accredited organizations providing care or treatment to those patients or conducting research of rare diseases, will be eligible for assistance, provided they meet the requirements outlined below.
All patients diagnosed with and presently undergoing treatment or care by an accredited medical professional for rare diseases are eligible for support from the foundation. Qualified individual applicants are those patients, regardless of race, religion or socio-economic background, who are currently undergoing treatment or ongoing care for a rare disease, and who are consequently incurring medical and/or remedial care expenses, and for whom the payment of said expenses will cause financial hardship on the patient and/or the patient's family.
The Board of Director's has initially established the determination of "financial hardship" as the extent to which out-of-pocket disease-related expenses exceed 2% of the applicant's average adjusted gross income for the past two years as determined for Federal Income Tax purposes. (Please refer to Section IV, Numbers 7 & 8 for definition of reimbursable out-of-pocket expenses.) The objective of the Foundation is to meet the greatest possible needs. Priority will be given to those with the greatest financial need and/or most immediate need as determined by the Selection Committee and the Board of Directors.
As a general rule, the Foundation is not limited as to the number of recipients who can receive assistance in any particular year. Grant allocations may not necessarily cover all of an individual applicant's requested financial needs. Benefits from the Foundation will be used to improve the quality of life and to ease the financial burden for the patients and their families.
Support will take the form of supplemental financial aid covering costs incurred by and directly related to the treatment and care of the patient that are not otherwise covered by traditional means (i.e., costs not covered by the family's healthcare insurance provider and/or Medicaid/Medicare if applicable). Eligible persons or organizations may re-apply for support annually.
Definition of Disqualification: Generally, people or organizations that are considered disqualified - or persons or organizations not qualified to benefit financially from the Foundation - include the following:
- Officers, directors or trustees of the Foundation
- Substantial Contributors to the Foundation (individuals or corporations)
- Companies or partnerships owned substantially by disqualified persons The spouses and immediate families of any of the above I. Applicant's information (not the patient's):