IDF-3rd WAS Conference

IDF Conference - 3rd WAS Family Conference, 2015

The Wiskott-Aldrich Foundation is pleased to announce the 3rd International WAS Families and Researchers Conference from June 25-27, 2015 in New Orleans, U.S.A.  All WAS families and patients are encouraged to attend to hear from the experts and share experiences. The 2nd WAS Family Conference was held in Baltimore in 2013.  It was a great success and there was overwhelming request for a 3rd conference.

The conference is jointly sponsored by the Immune Deficiency Foundation, and the Wiskott-Aldrich Foundation.  

Why attend:  This is a wonderful opportunity for WAS families to gather in a non-medical setting to:

• Hear from WAS experts in immunology, transplant, hematology and gene therapy from around the world, have their questions answered and concerns addressed.  

• Learn more about the latest therapies (including Gene Therapy) and hear about the breakthroughs that are being made  

• Share experiences with other families and for the children to meet other children and siblings of WAS families.

• Great opportunity for the family to have fun visiting New Orleans.

Where:  

Hyatt Regency, New Orleans,

601 Loyola Avenue

New Orleans, LA 70113, USA

(504) 561-1234

When:  Thursday, June 25- to Saturday 27, 2015

    WAS Specific Session*:  Noon, Thursday, June 25 to 5 PM, Friday, June 26.*

    General Sessions:   Saturday, June 27.  Connect with other families facing Primary Immune Deficiency and hear about a range of issues from Genetic Counseling, Families Facing Chronic illness, School & Insurance Concerns and more!  

Proposed Content: 

• What is WAS?  Spectrum of Clinical Manifestations and Diagnosis

• Pathophysiology of WAS.

• The WAS gene and how it affects WBC, platelets, basics on T and B cells

• Treatment of WAS – Options, Decision Making for Patients with different Clinical  Severity          

• Hematopoietic Stem Cell Transplant – Current state, Outcome, Complications, Practical notions

• HSCT – Long term outcome, QOL, complications, what to watch for, follow up routine, sterility and its preservation – Future directions,

• Gene therapy: efficacy and toxicity

• QOL for WAS patients

• Autoimmunity, relationship to cancer, management

• Prevention and Treatment of Bleeding Complications (Splenectomy, Eltrombopag, Romiplostim, Amicar, NovoSeven, platelet transfusion recommendations),

• Management of Eczema and Other Dermatologic Manifestations

• IL 2 Therapy: Preliminary Results

Speakers:

• Alessandro Aiuti, M.D., PhD.

• James Bussel, M.D.

• Fabio Candotti, M.D.

• Alain Fischer, M.D., PhD. 

• Luigi Notarangelo, M.D. 

• Hans Ochs, M.D. 

• Jordan Orange, M.D., Ph.D. 

• Joie Davis, PNP-BC, APNG

• Deborah Tamura, M.S., R.N.