>Physicians in the U.S.

Physicians in the U.S.

There are several physicians in the U.S. with expertise and experience in treating patients with WAS. Listed below are the leading WAS experts in the country and physicians who have expertise or have an active clinical interest in following patients with WAS. These lists are not complete, neither are they comprehensive. If there is any physician who you would like to add to the list please send me the information at sumathidoc@gmail.com and I will be glad to add them to the list.

Leading WAS Experts


Fabio Candotti, M.D.*

Senior Investigator, Genetics and Molecular Biology Branch

Head, Disorders of Immunity Section

National Human Genome Research Institute

National Institute of Health, Bethesda, MD

Building 49, Room 3A04

49 Convent Dr, MSC 4442

Bethesda, MD 20892-4442

Tel:(301) 435-2944

Fax:(301) 480-3678

E mail: fabio@mail.nih.gov

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Luigi Notarangelo, M.D.*

Director, Research and Molecular Diagnosis Program on Primary Immunodeficiencies

Professor of Pediatrics and Pathology

Boston Children's Hospital, Harvard Medical School

1 Blackfan Circle

Boston, MA 02115

Tel:(617) 919-2276

Fax: (617)730-0709

E mail: luigi.notarangelo@childrens.harvard.edu

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Washington State

Hans Ochs, M.D.*

Jeffrey Modell Chair

Chief, Immunology Clinic

Seattle Children's Hospital

Seattle Children's Research Institute


1900-9th Ave

Seattle, WA 98101

Tel: (206) 987-7324

E Mail: hans.ochs@seattlechildrens.org

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Physicians knowledgeable in the care of patients with WAS


Morton J. Cowan, M.D.*

Professor of Pediatrics

Chief, Blood and Marrow Transplant Division

UCSF Children's Hospital, Room M659

505 Parnassus Ave

San Francisco, CA 94143-1278

Phone: (415) 476-2188

Fax: (415) 502-4867

E Mail: mcowan@peds.ucsf.edu

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Michael R Jeng, M.D.

Associate Professor

Pediatric Hematology/Oncology

Lucille Packard Children's Hospital at Stanford

770 Welch Rd Ste 261

Palo Alto, CA 95304

Phone: (650) 497-8953

Fax: (650) 725-3219

E Mail: mjeng@stanford.edu

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Neena Kapoor, M.D.*

Professor of Clinical Pediatrics

Keck School of Medicine of the University of Southern California

Clinical Director

Division of Research Immunology/Bone Marrow Transplantation

Children's Hospital of Los Angeles

4650 Sunset Blvd. MS #62

Los Angeles, CA 90027

Phone: (323) 361-2546

Fax: (323) 660-1904

E Mail: nkapoor@chla.usc.edu

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Donald Kohn, M.D.*

Depts. of M.I.M.G. and Pediatrics

University of California, Los Angeles

290D BSRB, 615 Charles E. Young Drive South

Los Angeles CA 90095

Phone: (310) -794-1964

E Mail: dkohn@mednet.ucla.edu

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David B. Lewis, M.D.

Professor, Pediatrics-Immunology and Transplant Biology

Director of the Jeffrey Modell Primary Immunodeficiency Center at Stanford

Professor, Pediatrics

CCSR Building Rm 2115b

Stanford, CA 94305

Phone: 650-498-6073

E Mail: dblewis@stanford.edu

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Robertson Parkman M.D.

Professor of Pediatrics, Molecular Microbiology and Immunology

Department:Research Immunology/Bone Marrow Transplant

Childrens Hospital Los Angeles

Head, Division of Research Immunology/Bone Marrow Transplantation

4650 Sunset Blvd., MS #62

Los Angeles, CA 90027

Tel: (323) 361-2196

Fax: (323) 906-8192

E mail: rparkman@chla.usc.edu

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Jennifer Puck, M.D.*

Professor, Department of Pediatrics and Institute for Human Genetics University of California, San Francisco

513 Parnassus Avenue, HSE 301A, Box 0519

San Francisco, CA 94143-0519

Tel:(415) 476-3181

Fax:(415) 476-3466

E mail: puckj@peds.ucsf.edu

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E. Richard Stiehm, M.D.

Professor of Pediatrics

Division of Allergy, Immunology and Rheumatology at Mattel Children's Hospital at UCLA

10833 Le Conte Ave Ste 12-430

Los Angeles, CA 90095

Tel: (310) 825-6481

E Mail: estiehm@pediatrics.medsch.ucla.edu

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Diane Wara M.D.

Chief Of Immunology and Rheumatology

Program Director, Pediatric Clinical Research Center

UCSF Children's Hospital

UCSF Medical Centers

505 Parnassus Ave

San Francisco, CA

Tel: (415) 476-2171

Fax: (415)-476-3466

E mail: WaraD@peds.ucsf.edu

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Kenneth Weinberg, M.D.

Anne T. and Robert M. Bass

Professor of Cancer and Blood Diseases

Chief, Division of Stem Cell Transplantation

Department of Pediatrics

Stanford University School of Medicine

1000 Welch Road, Suite 300, Mail Code 5798

Stanford, CA 94304-5798

Tel: (650) 725-9250

Fax: (650) 724-1164

E Mail: kdnakash@stanford.edu


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Erwin W. Gelfand, M.D.*

Chairman, Department of Pediatrics


National Jewish Medical & Research Center

1400 Jackson St

Denver, CO 80206

Phone: (303) 388-4461 / (303) 398-1196

E Mail: gelfande@NJHealth.org

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Ramsay L. Fuleihan, M.D.

Attending Physician, Allergy and Immunology

Director, Primary Immunodeficiency Clinical Services

Associate Professor of Pediatrics

Northwestern University's Feinberg School of Medicine

2300 Children's Plaza, Box 60

Chicago, IL 60614

Phone: (773) 327-3710

Fax: (773) 327-3790

E Mail: rfuleihan@childrensmemorial.org

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Francisco A. Bonilla, M.D. PhD.*

Program Director, Clinical Immunology

Assistant in Medicine

Assistant Professor, Harvard Medical School

Division of Immunology,

Fegan - 6

300 Longwood Avenue

Boston, MA 02115

Phone: (617)-355-6117

Fax: (617)-730-0310

E Mail: Francisco.bonilla@childrens.harvard.edu

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Raif Geha, M.D*.

Chief, Division of Immunology, Children's Hospital Boston

James L. Gamble Professor of Pediatrics, Harvard Medical School

1 Blackfan Circle

Boston, MA 02115

Phone: (617) 919-2482

E Mail: raif.geha@childrens.harvard.edu

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Sung-Yun Pai MD*

Assistant Professor of Pediatrics, Harvard Medical School

Attending Staff, Combined Department of Pediatric Hematology-Oncology

Children’s Hospital/Dana-Farber Cancer Institute

Karp Family Research Laboratory, Room 08214

300 Longwood Avenue

Boston, MA 02115

Phone: Office: 617-919-2508

Patient Referral Line: 617-632-3961

Fax: 617-730-0934

E Mail: sung-yun.pai@childrens.harvard.edu

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David A. Williams, M.D.*

Director of Translational Research for Children's Hospital Boston

Leland Fikes Professor of Pediatrics, Harvard Medical School

Children's Hospital Boston

300 Longwood Ave, Karp 08125.3

Boston, MA 02115

Phone : (617)-919-2697

Fax: (617) 730- 0868

E Mail: DAWilliams@childrens.harvard.edu

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Alan Knutsen, M.D.*

Cardinal Glennon Children's Medical Center

Pediatric Research Institute

St. Louis University Health Sciences Center

1465 S. Grand Blvd

St. Louis, MO 63104

United States

Phone: 314-268-4014

Fax: 314-268-2712

Email: knutsenm@slu.edu

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Roger Kobayashi

Clinical Professor of Pediatrics

Allergy, Asthma & Immunology

UCLA School of Medicine

2808 S. 80th Avenue, #210

Omaha, NE 68124

Phone: 402-391-1800

Fax: 402-391-1563

E Mail: rogerkobayashi@pol.net

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New York

Arye Rubinstein, M.D.

Pediatric Allergy and Immunology

Montefiore Medical Group Morris Park Cfcc

1300 Morris Park Ave Rm 200

Bronx, NY 10461

Phone: (718) 430-2319

Fax: (718) 430-8982

E Mail: rubinste@aecom.yu.edu

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Richard J. O'Reilly, M.D

Chair, Department of Pediatrics;

Chief, Pediatric Bone Marrow Transplant Service;

Claire L. Tow Chair in Pediatric Oncology Research

Memorial Sloan-Kettering Cancer Center

425 E 67th St

Memorial Sloan Kettering Pediatrics

New York, NY 10002

Phone: 212-639-5957 Lab Phone: 646-888-2366

Email oreillyr@mskcc.org

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North Carolina

Rebecca Buckley, M.D.*

J. Buren Sidbury Professor of Pediatrics and Immunology

Division of Allergy & Immunology, Peds

Duke University Medical Center

362 Jones Bldg

Box 2898 Med Center

Durham, NC 27710

United States

Tel: (919) 684-2922

Fax: (919) 681-7979

E Mail: buckl003@mc.duke.edu

Joanne Kurtzberg, M.D.*

Professor of Pediatrics and Pathology

Director, Pediatric Blood and Marrow Transplant Program

Duke University Medical Center

Director, Carolinas Cord Blood Bank

Box 3350 DUMC

2400 Pratt Street, Suite 1400

Durham, NC 27705

Appointment Tel: (919) 668-1100

Office Tel: (919) 668-1119

Fax: (919) 668-1183


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Jacob Bleesing, M.D., PhD.*

Associate Professor of Pediatrics

Cincinnati Children's Hospital Medical Center

Division of Bone Marrow Transplantation and Immune Deficiency

3333 Burnet Avenue

MLC 7015

Cincinnati, OH 45229

Tel:(513) 636-4266

Fax;(513) 636-3549

E mail: jack.bleesing@cchmc.org

Alexandra Filipovich, M.D.

Ralph J. Stolle Chair in Clinical Immunology

Director, Immunodeficiency and Histiocytosis Program

Medical Director, Hematology/Oncology Diagnostic Laboratory

Cincinnati Children's Hospital

3333 Burnet Avenue

Cincinnati, OH 45229

Tel: (513) 636-7206 Fax: (513) 636-3549‎

E Mail: lisa.filipovich@cchmc.org


Kathleen Sullivan, MD, PhD*

Chief, Division of Allergy and Immunology

Children's Hospital of Philadelphia

3615 Civic Center Blvd.

Philadelphia, PA 19104

Phone: (215) 590-1697.

Fax: 267-426-0363.

E Mail: sullivak@mail.med.upenn.edu


Javier Chinen, M.D. Ph.D.*

Assistant Professor, Baylor College of Medicine

6621 Fannin Street, Feigin center

3rd Floor, FC 330.01

Houston, TX 77030

Phone: (832) 824-2599

Fax (832) 825-1260

E-mail: jxchinen@texaschildrenshospital.org

Celine Hanson, M.D.

Clinic Chief, Allergy and Immunology Clinic

6621 Fannin Street, Feigin Center

3rd Floor, MC FC 330.01

Houston, TX 77030

Phone: (832) 824-1319

Fax: (832) 825-1260

E Mail: ihanson@bcm.edu

Robert Krance, M.D.

Chief, Bone Marrow Clinic

Director, Pediatric Stem cell Transplant

Texas Children's Hospital

6621 Fannin Street, MC 3-3320

Houston, TX 77030

Phone: (832) 824-4661

Fax: 832-825-4688

E Mail: rkrance@bcm.edu

Jordan Orange, M.D., PhD.*

Chief of Service,

6621 Fannin Street, Feigin Center

3rd Floor, MC FC 330.01

Houston, TX 77030

Phone: (832) 824-1319

Fax: (832) 825-1260

E Mail: jsorange@texaschildrens.org

Howard M Rosenblatt, M.D.*

Pediatric Allergy and Immunology

1301 Barbara Jordan Blvd. Suite 200

Austin, Texas, 78723

Phone: (512) 628-1870

Fax: (512) 628-1871

William T. Shearer, M.D. PhD.*

Professor, Departments of Pediatrics, and Immunology

Baylor college of Medicine

1102 Bates Ave # Fc330.01

Houston, TX 77030

Phone: (832) 824-1274

Fax: (832) 825- 7131

E Mail: wtsheare@texaschildrens.org

Lakshmi Venkateswaran, M.D.

Assistant Professor, Department of Pediatrics, Section of Hematology-Oncology,

Baylor College of Medicine

6701 Fannin St., Ste 1410

Houston, TX 77030

Phone: 832-822-1514

Fax: 832-825-1503

E Mail: lxvenkat@txch.org


Mary Ellen Conley M.D.*

Department of Immunology/Mail Stop 351

St. Jude Children's Research Hospital

262 Danny Thomas Place

Memphis, TN 3815-3678

Phone: (901) 595-3977

Fax: (901) 595-3977

Email: maryellen.conley@stjude.org

Washington State

Lauri M. Burroughs, MD*

Seattle Children's

Pediatric Hematology/Oncology Physician

Acting Assistant Professor of Pediatrics

Fred Hutchinson Cancer Research Center

Pediatric Hematology/Oncology-Associate in Clinical Research

Phone: (206) 288-SCCA(7222)

Fax: (206) 288-1025

E Mail: lburroug@fhcrc.org

David Rawlings, M.D.

Children's Guild Association Endowed Chair in Pediatric Immunology

Director, Center for Immunity and Immunotherapies

Seattle Children’s Hospital Research Institute

Chief, Division of Immunology

Children's Hospital

Adjunct Professor, Immunology

University of Washington School of Medicine

1900 Ninth Avenue

UW Box 359300-C9S-7

Seattle, WA 98101

Phone: 206-987-7319

Fax: 206-987-7310

Email: drawling@u.washington.edu

Troy R. Torgerson, M.D. PhD.

Co-director of the Immunodeficiency Molecular Diagnostics Laboratory

Seattle Children's Research Institute

Children's Hospital

4800 Sand Point Way NE

Seattle, WA 98105

Phone: (206) 526-2000, (206)987-7450

Fax: (206) 527-3843

E Mail: ttorgers@u.washington.edu

Suzanne Skoda-Smith, M.D.*

Associate Professor, Assistant Program Director of the UWSOM Allergy and Immunology Fellowship Training Program

Seattle Children's

R-5441 - Immunology

4800 Sand Point Way NE

Seattle, WA 98105

Phone: 206-987-7450

E Mail: suzanne.skoda-smith@seattlechildrens.org

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