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Ask our community of doctors and families your questions, or answer questions with your own experience and expertise.
Search emerging treatments for WAS such as Gene Therapy, learn about the criteria for eligibility, and find out how to apply.
Organization News
EL-PFDD Voice of the Patient report approved. Read the report here.
EL-PFDD Meeting Feb 3, 2023 event successful broadcast with participation of Physicians, Researchers, FDA WAS families and board members.
The Wiskott-Aldrich Foundation was pleased to sponsor the 5th International WAS Family Conference in National Harbor, Maryland on June 20-22, 2019.
Wiskott-Aldrich Foundation Chairman Mike Skrynecki receiving notices for philanthropy award:
Medical and Research News
Synthetic Platelets built to treat bleeding: A significant milestone in the field of bio-mimetic materials
Deficiency of WASp in B cells leads to abnormalities in B cell function: A study using mice with isolated WASp deficiency in B cells.
New vector developed for WAS gene therapy Researchers develop a novel vector for the gene therapy of WAS with improved safety features.
Dr. Fritz Bach (1934-2011), transplant pioneer dies Dr. Bach, researcher and physician who played a key role in the first bone-marrow transplant for WAS in 1968 passes away.
Families in the News
Butterfly garden opened in honor of Joey Rogers in New Jersey Dolly Rogers from New Brunswick opens butterfly garden in honor of son, Joey Rogers who died four years ago.
To hear about some of our families, please see EL-PFDD broadcast