IDF Conference - 5th WAS Family Conference, 2019

The Wiskott-Aldrich Foundation is pleased to announce the  5th WAS Symposium for Families and Physicians Conference on June 20 and June 22 in National Harbor, MD, U.S.A.  All WAS families and patients are encouraged to attend to hear from the experts and share experiences. There are valuable sessions in the main IDF Conference that you are welcome to attend.  

The conference is jointly sponsored by the Immune Deficiency Foundation, the Wiskott-Aldrich Foundation and the Israeli WAS Association..  

Why attend:  This is a wonderful opportunity for WAS families to gather in a non-medical setting to:

• Hear from WAS experts in immunology, transplant, hematology and gene therapy from around the world, have their questions answered and concerns addressed.  
• Learn more about the latest therapies and hear about the breakthroughs that are being made  
• Have your pressing questions answered by WAS experts and make connections with them
• You may be able to have your child's case presented for discussion by WAS Experts
• Share experiences with other families and for the children to meet other children and siblings of WAS families.
• Great opportunity for the family to have fun visiting all the amazing sights and museums in the Washington DC ares.

Where:  

Gaylord National Resort and Convention Center

National Harbor,, MD, USA

When:  Thursday, June 20-22 2019

Agenda

Friday, June 21

11:00 am - 11:05 am     Introduction                                                              Dr. Fabio Candotti

11:05 am - 11:25  am    Discovery to Today                                                   Dr. Hans Ochs

11:25 am - 11:50 am     Understanding the Clinical Aspects of WAS         Dr. Fabio Candotti

11:55 am - 12:30 pm    WAS Carriers                                                               Dr. Sylvia Giliani

 

12:30 pm - 2:00 pm     Lunch

 

2:00 pm  - 2:30 pm      Management of mild WAS                                        Dr. Adrian Thrasher   

2:30 pm – 3:00 pm      Hematopoietic Stem Cell Transplant                       Dr.  Michael Albert

3:15  pm – 3:45 pm     Gene Therapy                                                              Dr. Alessandro Aiuti 

3:45 pm  – 4:15 pm      Discussion of WAS Cases !                                        Dr. Luigi Notarangelo       

4:15 pm - 5:00 pm    Discussion of WAS Cases  !!                          Dr. Michael Albert

5:00 pm - 5:30 pm    WAS Family Stories                                      WAS Families

Saturday, June 22

 

11:00 am - 11:30 am   Gene Therapy in the US                                                Dr.  Sung Yun Pai

11:30 am - 11:55 am   Psychological Challenges faced by WAS Families    John Seymour, PhD

11:55 am - 12:00 pm   Closing Remarks                                                             Dr. Fabio Candotti

Important Dates:  

Early Registration:  Registration is now open.  Early Registration Deadline is on or before April 30th.  To register, please go to Conference Registration

Scholarships:  

The Wiskott-Aldrich Foundation is offering a limited number of partial scholarships based on financial need.  If you would like to apply for a scholarship to cover the cost of registration, child care, hotel, and or to cover travel costs, download and complete the application and email it to sumathi.iyengar@wiskott.org  

Deadline for scholarship application is May 15th   

To download application, please click on:   Scholarship Application in Google Docs   

Conference Organizers:  

• Dr. Fabio Candotti, M.D., Conference Chair.  University de Lausanne, Switzerland
• Brian Fitzek: Immune Deficiency Foundation
• Sumathi Iyengar, M.D., Wiskott-Aldrich Foundation  
• Aimee McNally, Wiskott-Aldrich Foundation
• Paige Welborn, Wiskott-Aldrich Foundation
• Amir Kedar: Israeli WAS Association 

Questions?  Contact Sumathi Iyengar at sumathi.iyengar@wiskott.org  +1 919 641 7134

*  Agenda, times etc are subject to change