IDF Conference - The 2nd WAS Families and Physician Conference 2013.
The Wiskott-Aldrich Foundation is pleased to announce the 2nd International WAS Families and Researchers Conference from June 27-29, 2013 in Baltimore, MD. U.S.A. All WAS families and patients are encouraged to attend to hear from the experts and share experiences. The 1st WAS Family Conference was held in Chicago in 2010 and was a grand success and there was overwhelming request for a 2nd conference.
The conference is jointly sponsored by the Immune Deficiency Foundation, the National Human Genome Research Institute, NIH and the Wiskott-Aldrich Foundation.
Why attend : This is a wonderful opportunity for WAS families to gather in a non-medical setting to:
- Hear from WAS experts in immunology, transplant, hematology and gene therapy from around the world, have their questions answered and concerns addressed.
- Learn more about the latest therapies (including Gene Therapy) and hear about the breakthroughs that are being made
- Share experiences with other families and for the children to meet other children and siblings of WAS families.
- Great opportunity for the family to have fun visiting Baltimore and nearby Washington D.C.
401 West Pratt Street
Baltimore, Maryland 21201
June 27-29, 2013.
WAS Specific Sessions:
Thursday: 11:45 AM - 5 PM
Lunch: 11:45 AM - 12:30 PM
Drop off kids: 12:30-12:45 PM
Parent Session: 1 - 1:30 PM
Scientific Session: 1:30 - 5 PM
Welcome reception 6:15
Friday: 10:30 - 5:30
Silent auction 6:30 drop kids off at 6pm
Light rail station: 1:60
Hotel nearby: sheraton:
Thursday, June 27th: Noon to 5 PM and Fri, June 28th: All day
General Sessions: Sat, June 29: Connect with other families facing Primary Immune Deficiency and hear about a range of issues from Genetic Counseling, Families Facing Chronic illness, School & Insurance Concerns and more!
WAS Experts Consensus Meeting (For physicians and researchers only): Saturday
- Discuss clinical management of patients with WAS including bone marrow transplant and gene therapy. Review the roles of bone marrow and cord blood transplant, side effects of chemo-therapy, post transplant outcomes and long term sequelae.
- Discuss the role of splenectomy and thromobpoietic medications to increase platelet count and decrease risk of bleeding in patient.
- Address psychological issues for patients, parents and healthy siblings who may or may not be gene carriers or bone marrow donors.
- Discuss the importance of and obtain critical family input to the WAS Registry.
- Alessandro Aiuti, MD.
- Michael Albert, MD.
- Alessandro Aiuti, MD
- Mira Barda-Saad, PhD
- Michael Blaese, MD
- Jim Bussell, MD
- Marina Cavazzana-Calvo, M.D.
- Fabio Candotti, MD
- Christian Braun, PhD
- Hans Ochs, MD
- Joie Davi, BSN, PNP, MSN
- Sung-Yun Pai, MD
- Adrian Thrasher, MD
Registration: Early Bird Registration by April 20: $245 for a family of 4 including childcare and meals.
Hotel Costs: $209 plus taxes per night.
Scholarships: Limited number of need based partial scholarships based on financial need are available through are available through IDF. if you would like to apply for a scholarship to cover the hotel costs for the nights of the 27th, 28th and 29th, please go to http://idfnationalconference.org/register The deadline for the Scholarship Application is March 21. Limited number of partial scholarships based on financial need are available through the Wiskott-Aldrich Foundation on a first-come, first served basis. If you would like to apply for a scholarship to cover the cost of registration or to cover travel costs, please contact Sumathi Iyengar at firstname.lastname@example.org call at (919) 641-7134.
Thank You to our Sponsors
Israeli WIskott-Aldrich Syndrome Association
Mrs.Judy and Haim Erder
National Human Genome Research Institute, NIH
Sigma Nu, Georgia Tech.