Events





IDF Conference - 4th WAS Family Conference, 2017


The Wiskott-Aldrich Foundation is pleased to announce the 4th WAS Families and Physician  Conference on June 15 and June 16 in Anaheim, California, U.S.A.  There are valuable sessions in the main IDF Conference that you are welcome to attend.  All WAS families and patients are encouraged to attend to hear from the experts and share experiences. 

The conference is jointly sponsored by the Immune Deficiency Foundation, the Israeli WAS Association and the Wiskott-Aldrich Foundation.  


Why attend:  This is a wonderful opportunity for WAS families to gather in a non-medical setting to:
  • Hear from WAS experts in immunology, transplant, hematology and gene therapy from around the world, have their questions answered and concerns addressed.  
  • Learn more about the latest therapies (including Gene Therapy) and hear about the breakthroughs that are being made  
  • Share experiences with other families and for the children to meet other children and siblings of WAS families.
  • Great opportunity for the family to have fun visiting Disneyland at no cost (included as part of conference registration).

Where:  
Anaheim Marriott
700 Convention Way,
Anaheim, CA 92802, USA
+1(714) 750-8000

When:  Thursday, June 15-16 2017


Proposed Content: 

  • Clinical Aspects of Wiskott-Aldrich Syndrome
  • Therapeutic Options for WAS
  • Observations in WAS Carrier Females
  • Discussion of Submitted WAS Cases
  • Quality of Life of Patients with WAS
  • New & Future Therapeutic Options
  • Family Stories
  • Long-Term Outcome of Hematopoietic Stem Cell Transplantation
  • Psychosocial & Mental Health Issues
Final Agenda : Please see final WAS Symposium Agenda for session timings. 

Speakers:

Michael Albert, MD, Ludwig Maximillian University of Munich

Mira Barda-Saad, MD, PhD, Bar-Ilan University, Israel
Siobhan Burns, PhD, University College London
Fabio Candotti, MD, Centre Hospitalier Universitaire Vaudois
Silvia Clara Giliani, PhD, University of Brescia
Mort Cowan, MD, University of California – San Francisco
Brian Davis, MD, PhD, University of Texas Health Science Center
Sumathi Iyengar, MD, Wiskott Aldrich Foundation
Christina Mangurian, MD, University of California – San Francisco
Hans Ochs, MD, Seattle Children’s Hospital
Jordan Orange, MD, PhD, Texas Children’s Hospital
Maria Pia Cicalese, MD, PhD, Institute for Gene Therapy – Milan, Italy
Sung-Yun Pai, MD, Boston Children’s Cancer and Blood Disorders Center

Important Dates:  


Early Registration:  Registration is now open.  Early Registration Deadline is on or before April 30th.  To register, please go to Conference Registration


Scholarships:   Limited number of partial scholarships based on financial need are available through the Wiskott-Aldrich Foundation.  If you would like to apply for a scholarship to cover the cost of registration, child care and or to cover travel costs, download and complete the application  and email it to sumathi.iyengar@wiskott.org  

Deadline for scholarship application is April 25th.  

To download application, please click on:   Scholarship Application in Microsoft Word   and in PDF format

Click here for conference registration, hotel costs etc: Hotel and Registration costs

Questions?  Contact one of the conference organizers below.


Conference Organizers:  
  • Dr. Fabio Candotti, M.D., Conference Chair.  University de Lausanne, Switzerland
  • Kathy Antilla: Immune Deficiency Foundation
  • Sumathi Iyengar, M.D., Wiskott-Aldrich Foundation  sumathi.iyengar@wiskott.org  +1 919 641 7134
  • Amir Kedar: Israeli WAS Association 

*  Agenda, times etc are subject to change