Delphi Consensus on Clinical Management of WAS has been launched
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Organization News
Organization News
Delphi Consensus on the clinical Management of Wiskott-Aldrich Syndrome for patients living with WAS has been launched.
You can now donate using Paypal
Please view Michael Albert, M.D Talk on "Time to stop using XLT and mild-WAS to label patients" on May 10, 2024 . Read the Q&A Report based on audience questions.
EL-PFDD Voice of the Patient report approved. Read the report here.
EL-PFDD Meeting Feb 3, 2023 event successful broadcast with participation of Physicians, Researchers, FDA WAS families and board members.
Wiskott-Aldrich Foundation Chairman Mike Skrynecki receiving notices for philanthropy award:
Medical and Research News
Medical and Research News
FDA Approves First Gene Therapies to Treat Patients with Sickle Cell Disease. Approval of these innovative gene therapies spells hope for approval of gene therapies for WAS.
Synthetic Platelets built to treat bleeding: A significant milestone in the field of bio-mimetic materials.
Deficiency of WASp in B cells leads to abnormalities in B cell function: A study using mice with isolated WASp deficiency in B cells.
Families in the News
Families in the News
To hear about some of our families, please see EL-PFDD broadcast.
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