Patients and Families

Find A Doctor:  An Overview

WAS comes with its own unique set of medical emergencies and requirements for chronic medical care. Having caring and knowledgeable physicians is of utmost importance for patients with WAS. Having a trusted physician reduces the stress and anxiety often experienced by caregivers.  It provides a safe and consistent haven for these children to go to when they are unwell.   A long term relationship with the physician, allows them to address changing emotional and physical needs over time.    

This page has links with contact information for WAS experts and physicians who have an active clinical interest in caring for patients with Wiskott-Aldrich Syndrome.  This list is comprised of physicians who have been recommended by physicians and/or patients.  I have also listed experts in gene therapy for those who are interested in that option.

Along with the diagnosis of WAS, comes the need for genetic counseling, testing of family members and possible concerns with future pregnancies.  There are links to make it easier to access some of these physicians, genetic counselors and labs around the world.  

These lists are not complete or comprehensive.  If you find any errors or omissions in the listing, please let me know and I will be glad to change it.  If you would like to add the name of a physician who you know and would recommend, please send me the information at sumathidoc@gmail.com and I will be glad to add them to the list. 

Physicians

Geneticists and Genetic Testing Centers