Overview

Primary Immune Deficiency Organizations

Bone Marrow & Cord Blood Transplant 

Genetic Information & Testing 

Overview

For Pete's Sake Family

Support Program

Financial Assistance

Housing, Travel & Medication

Fundraising Assistance 

Wish Granting Organizations

Educational Scholarships 

Medical Literature

Family Literature

Literature Resources

Medical Supplies

• Bone Marrow & Cord Blood Transplant

• Transplant information and donor search resources

  • National Marrow Donor Program
  • The Anthony Nolan Foundation
  • American Cancer Society: Bone marrow and Peripheral Blood Stem Cell Transplants.  This site includes cord blood information
  • BMT Infonet Homepage
  • Cord Blood Transplants
  • Understanding Survival Outcomes Data

  Organizations that help people with medical flights

  • Mercy Medical Airlift A group of charitable aviation networks for people needing free medical flights.

  List of companies that help with medications

  • Roche Patient Assistance Program (Cellcept)
    (800) 772-5790
  • Novartis Patient Assistance Program (Cyclosporine)
    (888) 455-6655
  • Novartis Transplant Reimbursement Information (Neoral)
    (877) 952-1000
  • Astellas Patient Assistance Program for Organ Transplant (Prograf)
    (800) 477-6472
  • Abbott Patient Assistance Program (Gengraf)
    (800) 633-9110
  • Wyeth Patient Assistance Program (Rapamune)
    (877) 472-7268

  Financial Resources

  Be sure to visit our Financial Resources section for a comprehensive list of resources in the US, UK and Canada.