Patients & Families


Physicians in the U.S.


There are several physicians in the U.S. with expertise and experience in treating patients with WAS. Listed below are the leading WAS experts in the country and physicians who have expertise or have an active clinical interest in following patients with WAS. These lists are not complete, neither are they comprehensive. If there is any physician who you would like to add to the list please send me the information at sumathidoc@gmail.com and I will be glad to add them to the list.

Leading WAS Experts

 

Maryland

Fabio Candotti, M.D.*
Senior Investigator, Genetics and Molecular Biology Branch
Head, Disorders of Immunity Section
National Human Genome Research Institute
National Institute of Health, Bethesda, MD
Building 49, Room 3A04
49 Convent Dr, MSC 4442
Bethesda, MD 20892-4442
Tel:(301) 435-2944

Fax:(301) 480-3678
E mail: fabio@mail.nih.gov


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Massachusetts

Luigi Notarangelo, M.D.*
Director, Research and Molecular Diagnosis Program on Primary Immunodeficiencies
Professor of Pediatrics and Pathology
Boston Children's Hospital, Harvard Medical School
1 Blackfan Circle
Boston, MA 02115
Tel:(617) 919-2276
Fax: (617)730-0709
E mail: luigi.notarangelo@childrens.harvard.edu


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Washington State

Hans Ochs, M.D.*
Jeffrey Modell Chair
Chief, Immunology Clinic
Seattle Children's Hospital
Seattle Children's Research Institute
C9S-7-Immunology
1900-9th Ave
Seattle, WA 98101
Tel: (206) 987-7324
E Mail: hans.ochs@seattlechildrens.org


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Physicians knowledgeable in the care of patients with WAS

 

California

Morton J. Cowan, M.D.*
Professor of Pediatrics
Chief, Blood and Marrow Transplant Division
UCSF Children's Hospital, Room M659
505 Parnassus Ave
San Francisco, CA 94143-1278
Phone: (415) 476-2188
Fax: (415) 502-4867
E Mail: mcowan@peds.ucsf.edu


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Michael R Jeng, M.D.

Associate Professor
Pediatric Hematology/Oncology
Lucille Packard Children's Hospital at Stanford 
770 Welch Rd Ste 261
Palo Alto, CA 95304
Phone: (650) 497-8953
Fax:  (650) 725-3219
E Mail:   mjeng@stanford.edu

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Neena Kapoor, M.D.*
Professor of Clinical Pediatrics
Keck School of Medicine of the University of Southern California 
Clinical Director
Division of Research Immunology/Bone Marrow Transplantation
Children's Hospital of Los Angeles
4650 Sunset Blvd. MS #62
Los Angeles, CA 90027
Phone: (323) 361-2546
Fax: (323) 660-1904
E Mail:  nkapoor@chla.usc.edu


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Donald Kohn, M.D.*
Depts. of M.I.M.G. and Pediatrics 
University of California, Los Angeles 
290D BSRB, 615 Charles E. Young Drive South 
Los Angeles CA 90095 
Phone: (310) -794-1964 
E Mail: dkohn@mednet.ucla.edu


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David B. Lewis, M.D.
Professor, Pediatrics-Immunology and Transplant Biology
Director of the Jeffrey Modell Primary Immunodeficiency Center at Stanford
Professor, Pediatrics
CCSR Building Rm 2115b
Stanford, CA 94305
Phone:  650-498-6073
E Mail:  dblewis@stanford.edu


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Robertson Parkman M.D.
Professor of Pediatrics, Molecular Microbiology and Immunology
Department:Research Immunology/Bone Marrow Transplant
Childrens Hospital Los Angeles
Head, Division of Research Immunology/Bone Marrow Transplantation
4650 Sunset Blvd., MS #62
Los Angeles, CA 90027
Tel: (323) 361-2196
Fax: (323) 906-8192
E mail: rparkman@chla.usc.edu


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Jennifer Puck, M.D.*
Professor, Department of Pediatrics and Institute for Human Genetics University of California, San Francisco
513 Parnassus Avenue, HSE 301A, Box 0519
San Francisco, CA 94143-0519
Tel:(415) 476-3181
Fax:(415) 476-3466
E mail: puckj@peds.ucsf.edu


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E. Richard Stiehm, M.D.
Professor of Pediatrics
Division of  Allergy, Immunology and Rheumatology at Mattel Children's Hospital at UCLA
10833 Le Conte Ave Ste 12-430
Los Angeles, CA 90095
Tel: (310) 825-6481
E Mail: estiehm@pediatrics.medsch.ucla.edu



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Diane Wara M.D.
Chief Of Immunology and Rheumatology
Program Director, Pediatric Clinical Research Center
UCSF Children's Hospital
UCSF Medical Centers
505 Parnassus Ave
San Francisco, CA
Tel: (415) 476-2171
Fax: (415)-476-3466 
E mail: WaraD@peds.ucsf.edu


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Kenneth Weinberg, M.D.
Anne T. and Robert M. Bass 
Professor of Cancer and Blood Diseases 
Chief, Division of Stem Cell Transplantation 
Department of Pediatrics 
Stanford University School of Medicine 
1000 Welch Road, Suite 300, Mail Code 5798 
Stanford, CA 94304-5798 
Tel: (650) 725-9250 
Fax: (650) 724-1164 
E Mail: kdnakash@stanford.edu 
kweinberg@chla.usc.edu


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Colorado

Erwin W. Gelfand, M.D.*
Chairman, Department of Pediatrics
Professor
National Jewish Medical  & Research Center
1400 Jackson St
Denver, CO 80206
Phone: (303) 388-4461 / (303) 398-1196
E Mail: gelfande@NJHealth.org


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Illinois

Ramsay L. Fuleihan, M.D.
Attending Physician, Allergy and Immunology 
Director, Primary Immunodeficiency Clinical Services
Associate Professor of Pediatrics
Northwestern University's Feinberg School of Medicine
2300 Children's Plaza, Box 60
Chicago, IL 60614
Phone: (773) 327-3710
Fax: (773) 327-3790
E Mail: rfuleihan@childrensmemorial.org


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Massachusetts

Francisco A. Bonilla, M.D. PhD.*
Program Director, Clinical Immunology
Assistant in Medicine
Assistant Professor, Harvard Medical School
Division of Immunology,
Fegan - 6
300 Longwood Avenue
Boston, MA  02115 
Phone: (617)-355-6117
Fax: (617)-730-0310
E Mail: Francisco.bonilla@childrens.harvard.edu


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Raif Geha, M.D*. 
Chief, Division of Immunology, Children's Hospital Boston 
James L. Gamble Professor of Pediatrics, Harvard Medical School 
1 Blackfan Circle 
Boston, MA 02115 
Phone: (617) 919-2482 
E Mail: raif.geha@childrens.harvard.edu


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Sung-Yun Pai MD*
Assistant Professor of Pediatrics, Harvard Medical School
Attending Staff, Combined Department of Pediatric Hematology-Oncology
Children’s Hospital/Dana-Farber Cancer Institute
Karp Family Research Laboratory, Room 08214
300 Longwood Avenue
Boston, MA 02115
Phone: Office: 617-919-2508
Patient Referral Line: 617-632-3961
Fax: 617-730-0934
E Mail: sung-yun.pai@childrens.harvard.edu


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David A. Williams, M.D.* 
Director of Translational Research for Children's Hospital Boston
Leland Fikes Professor of Pediatrics, Harvard Medical School
Children's Hospital Boston
300 Longwood Ave, Karp 08125.3
Boston, MA 02115
Phone : (617)-919-2697
Fax: (617) 730- 0868
E Mail: DAWilliams@childrens.harvard.edu


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Missouri

Alan Knutsen, M.D.* 
Cardinal Glennon Children's Medical Center
Pediatric Research Institute
St. Louis University Health Sciences Center
1465 S. Grand Blvd
St. Louis, MO 63104 
United States 
Phone: 314-268-4014 
Fax: 314-268-2712 
Email: knutsenm@slu.edu


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Nebraska

Roger Kobayashi
Clinical Professor of Pediatrics
Allergy, Asthma & Immunology
UCLA School of Medicine
2808 S. 80th Avenue, #210
Omaha, NE 68124 
Phone: 402-391-1800 
Fax: 402-391-1563 
E Mail: rogerkobayashi@pol.net


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New York

Arye Rubinstein, M.D.
Pediatric Allergy and Immunology  
Montefiore Medical Group Morris Park Cfcc   
1300 Morris Park Ave Rm 200
Bronx, NY 10461
Phone: (718) 430-2319
Fax: (718) 430-8982
E Mail: rubinste@aecom.yu.edu


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Richard J. O'Reilly, M.D

Chair, Department of Pediatrics; 
Chief, Pediatric Bone Marrow Transplant Service; 
Claire L. Tow Chair in Pediatric Oncology Research
Memorial Sloan-Kettering Cancer Center
425 E 67th St
Memorial Sloan Kettering Pediatrics
New York, NY 10002 
Phone:  212-639-5957 Lab Phone: 646-888-2366 
Email  oreillyr@mskcc.org


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North Carolina

Rebecca Buckley,  M.D.* 
J. Buren Sidbury Professor of Pediatrics and Immunology
Division of Allergy & Immunology, Peds
Duke University Medical Center
362 Jones Bldg
Box 2898 Med Center
Durham, NC 27710 
United States 
Tel: (919) 684-2922 
Fax: (919) 681-7979 
E Mail: buckl003@mc.duke.edu

Joanne Kurtzberg, M.D.*

Professor of Pediatrics and Pathology
Director, Pediatric Blood and Marrow Transplant Program
Duke University Medical Center
Director, Carolinas Cord Blood Bank
Box 3350 DUMC
2400 Pratt Street, Suite 1400
Durham, NC 27705
Appointment Tel: (919) 668-1100
Office Tel: (919) 668-1119
Fax: (919) 668-1183
email:kurtz001@mc.duke.edu


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Ohio

Jacob Bleesing, M.D., PhD.*
Associate Professor of Pediatrics
Cincinnati Children's Hospital Medical Center 
Division of Bone Marrow Transplantation and Immune Deficiency 
3333 Burnet Avenue
MLC 7015
Cincinnati, OH 45229 
Tel:(513) 636-4266
Fax;(513) 636-3549
E mail: jack.bleesing@cchmc.org

Alexandra Filipovich, M.D.
Ralph J. Stolle Chair in Clinical Immunology
Director, Immunodeficiency and Histiocytosis Program
Medical Director, Hematology/Oncology Diagnostic Laboratory
Cincinnati Children's Hospital
3333 Burnet Avenue
Cincinnati, OH 45229
Tel: (513) 636-7206 Fax: (513) 636-3549‎ 
E Mail:  lisa.filipovich@cchmc.org

Pennsylvania

Kathleen Sullivan, MD, PhD* 

Chief, Division of Allergy and Immunology
Children's Hospital of Philadelphia
3615 Civic Center Blvd.
Philadelphia, PA 19104
Phone:  (215) 590-1697. 
Fax: 267-426-0363. 
E Mail: sullivak@mail.med.upenn.edu

Texas

Javier Chinen, M.D. Ph.D.*
Assistant Professor, Baylor College of Medicine
6621 Fannin Street, Feigin center
3rd Floor, FC 330.01
Houston, TX 77030
Phone: (832) 824-2599
Fax (832) 825-1260
E-mail: jxchinen@texaschildrenshospital.org

Celine Hanson, M.D.
Clinic Chief, Allergy and Immunology Clinic
6621 Fannin Street, Feigin Center
3rd Floor, MC FC 330.01
Houston, TX 77030
Phone: (832) 824-1319
Fax:     (832) 825-1260
E Mail: ihanson@bcm.edu

Robert Krance, M.D.
Chief, Bone Marrow Clinic
Director, Pediatric Stem cell Transplant
Texas Children's Hospital
6621 Fannin Street, MC 3-3320
Houston, TX 77030
Phone: (832) 824-4661
Fax: 832-825-4688
E Mail: rkrance@bcm.edu

Jordan Orange, M.D., PhD.*
Chief of Service, 
6621 Fannin Street, Feigin Center
3rd Floor, MC FC 330.01
Houston, TX 77030
Phone: (832) 824-1319
Fax:     (832) 825-1260
E Mail: jsorange@texaschildrens.org 

Howard M Rosenblatt, M.D.
Pediatric Allergy and Immunology
1301 Barbara Jordan Blvd. Suite 200
Austin, Texas, 78723
Phone: (512) 628-1870
Fax:  (512) 628-1871   

William T. Shearer, M.D. PhD.*
Professor, Departments of Pediatrics, and Immunology
Baylor college of Medicine
1102 Bates Ave # Fc330.01
Houston, TX 77030
Phone: (832) 824-1274
Fax:  (832) 825- 7131
E Mail: wtsheare@texaschildrens.org


Lakshmi Venkateswaran, M.D. 

Assistant Professor,  Department of Pediatrics, Section of Hematology-Oncology,
Baylor College of Medicine
6701 Fannin St., Ste 1410
Houston, TX 77030
Phone:  832-822-1514
Fax:  832-825-1503
E Mail:  lxvenkat@txch.org

Tennessee

Mary Ellen Conley M.D.*
Department of Immunology/Mail Stop 351
St. Jude Children's Research Hospital
262 Danny Thomas Place
Memphis, TN 3815-3678
Phone: (901) 595-3977
Fax: (901) 595-3977
Email: maryellen.conley@stjude.org

Washington State

Lauri M. Burroughs, MD*
Seattle Children's
Pediatric Hematology/Oncology Physician
Acting Assistant Professor of Pediatrics
Fred Hutchinson Cancer Research Center
Pediatric Hematology/Oncology-Associate in Clinical Research 
Phone: (206) 288-SCCA(7222)
Fax: (206) 288-1025
E Mail: lburroug@fhcrc.org

David Rawlings, M.D.
Children's Guild Association Endowed Chair in Pediatric Immunology
Director, Center for Immunity and Immunotherapies
Seattle Children’s Hospital Research Institute
Chief, Division of Immunology
Children's Hospital
Adjunct Professor, Immunology
University of Washington School of Medicine
1900 Ninth Avenue
UW Box 359300-C9S-7
Seattle, WA 98101 
Phone: 206-987-7319
Fax: 206-987-7310 
Email: drawling@u.washington.edu 

Troy R. Torgerson, M.D. PhD. 
Co-director of the Immunodeficiency Molecular Diagnostics Laboratory
Seattle Children's Research Institute
Children's Hospital
4800 Sand Point Way NE
Seattle, WA  98105
Phone: (206) 526-2000, (206)987-7450
Fax: (206) 527-3843
E Mail: ttorgers@u.washington.edu

Suzanne Skoda-Smith, M.D.*
Associate Professor, Assistant Program Director of the UWSOM Allergy and Immunology Fellowship Training Program
Seattle Children's
R-5441 - Immunology
4800 Sand Point Way NE
Seattle, WA 98105
Phone:  206-987-7450
E Mail:  suzanne.skoda-smith@seattlechildrens.org


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Leading WAS Experts
 Maryland
 
Massachusetts
Washington State 
Listing by State
California  
Colorado    
Illinois   
Massachusetts  
Missouri  
Nebraska    
New York   
North Carolina  
Ohio  
Pennsylvania
Texas  
Tennessee  
Washington State