Patients and Families

Get Involved

Volunteer your time


What can I do for myself and for others?  For the foundation? Volunteer!

We have a group of dedicated volunteers who offer peer support, offering encouragement to families who are dealing with WAS.  Our volunteers help provide information on WAS, ways to connect with families, educational resources and help raise funds around the country. 

Interested in working with Wiskott-Aldrich Foundation? There are many opportunities to use your time and talents to make a difference. Here are some of the ways that you can help.

  • Being an advocate for patients and families
  • Increasing awareness of WAS
  • Fundraising
  • Peer Support Volunteer
  • Join our support group and share your experience with other families

If you are interested in becoming a volunteer please email Robin Wenzel at robinwenzel@yahoo.com  Thank you!

Donate

Please send your check to:
Wiskott-Aldrich Foundation
4480 South Cobb Drive Ste H 
PMB 223
Smyrna, GA 30080-6989

  • Matching Gifts:  Your donation's may be eligible for a matching gift from your employer.  Please go to your HR department or website to identify your company's matching gift criteria.  The Foundation is a 501(c)(3) nonprofit organization, and we can help you fill out any necessary paperwork!
  • Payroll Deduction from your employer

How will your donation be used? 

The Wiskott-Aldrich Foundation is run by a board of volunteers who are dedicated to the cause.   We work closely with the Scientific Advisory Committee, a group of dedicated and visionary experts in Wiskott-Aldrich Syndrome from around the world.  They guide our foundation on selecting key projects to fund and help us with all of our educational programs and objectives.  To read more about our strategy, go to:  Strategy

The funds that are received are allocated for three main purposes in alignment with the Mission of our organization:  To read more about our mission and goals, please go to:  Mission and Goals

  • Medical Research
  • Family Support
  • Education for families and medical professionals

Become a part of a WAS Registry

There are three WAS registries that are actively recruiting patients in order to build a database that will provide valuable information to physicians and researchers who can study the data and provide improved care to the patients. 

Why is participation important? 

  • Maintaining the relationship between researchers, physicians and patients is vital to progress in improving care for WAS patients. 
  • Valuable data regarding patients with WAS is collected and analyzed. 
  • Patients and carriers maybe able to participate in a study that will collect information on children with WAS who have and those who have not had a transplant.
  • The results will help us to better understand the disease and help optimize treatment approaches for this disorder.
 

> Back to Top                                                                                           > Back to Patients and Families