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Research

    WAS Experience Survey


    Research Interview about Wiskott Aldrich Syndrome (WAS)

    Are you diagnosed with Wiskott Aldrich Syndrome or are you a caregiver of an individual that has been diagnosed with Wiskott Aldrich Syndrome?

    Share your experiences with WAS during a research interview. Interviews will be conducted by phone and last about 90 minutes. To learn more about the research interview or see if you qualify contact Evidera staff at WASresearch@evidera.com or by calling 1-800-806-1467 if you are calling from the US or 0-800-0885496 if you are calling from the UK.

    Research interviews are being conducted with adolescents and adult WAS patients between the ages of 12 to 30 years or caregivers of WAS patients between the ages of 2 to 30 years. This is a non-medication research interview study asking participants and caregivers about their experiences with WAS.

    You will also be asked to complete a questionnaire about yourself.

    Eligible participants who participate in the telephone interview will receive $100
    [OR LOCAL CURRENCY EQUIVALENT].

     

    For more information about this study, please contact Evidera staff at WASresearch@evidera.com or by calling 1-800-806-1467 if you are calling from the US or 0-800-0885496 if you are calling from the UK.

    Your study records will be kept as confidential as possible. Only a number and initials will be used to identify you.  You will not be personally identified in any reports or publications that may result from this research study. If you are eligible and decide to participate, we will not contact again you after completion of the interview.